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Mum of boy with PPFIBP1 gene says finding others gave her ‘strength’

Source link : https://newshealth.biz/health-news/mum-of-boy-with-ppfibp1-gene-says-finding-others-gave-her-strength/

When Amanda and Nick learnt their son had a life-limiting condition, they had no-one in the same situation to turn to. Jack is only 11 months old but is one of only 16 children in the world with a genetic condition that is so rare it doesn’t have a name. “We are going to outlive […]

The post Mum of boy with PPFIBP1 gene says finding others gave her ‘strength’ first appeared on News Health.

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Author : News Health

Publish date : 2025-06-06 21:56:00

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