Source link : https://london-news.net/christmas-hope-for-brave-girl-with-rare-condition-amid-ongoing-health-struggles/
The mother of a seven-year-old girl with a rare genetic disorder has expressed her hopes for a holiday spent at home this Christmas, after enduring several festive seasons in a medical facility.
Zarwa, who hails from London, suffers from geleophysic dysplasia, an uncommon type of dwarfism that impacts just over 30 individuals globally.
This condition has resulted in her airway being too constricted, complicating her ability to breathe and requiring numerous hospitalizations throughout her life.
Fahima, Zarwa’s mother, mentioned that her daughter has been receiving care at Great Ormond Street Hospital (GOSH) since 2020, having spent last Christmas in the hospital.
Despite the hurdles, she praised the hospital charity for its efforts to make the holiday season memorable for the children on the wards.
“The GOSH charity provided Zarwa with an incredible Christmas,” Fahima recounted.
“She fell asleep and awoke to find her ward transformed with sparkling lights and festive decorations. There was also a stocking filled with presents.”
Fahima noted that Zarwa engaged in arts and crafts, created snowflakes, and had a special visit from Santa Claus.
“And she even got to meet the Grinch,” she continued. “She had watched the movie countless times and couldn’t believe she met him in person. So we can honestly say the Grinch saved our Christmas.”
Zarwa also featured in the charity’s Christmas television commercial, which showcased actual footage of twelve families…
—-
Author : [email protected]
Publish date : 2025-12-13 14:36:00
Copyright for syndicated content belongs to the linked Source.
—-
1 – 2 – 3 – 4 – 5 – 6 – 7 – 8